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Present at ICIEM 2025

Film & Panel Discussion For the next Jelte

Scenes from For the next Jelte were shown during an official session at ICIEM 2025, followed by a panel with the director and main protagonists.

🗓 Date: September 3, 2025
🕓 Time: 16:15 – 17:15
📍 Venue: Room 6 (Sakura)

Trailer:

Story

For the next Jelte is a powerful documentary about the fight to bring inborn errors of metabolism out of the shadows.

Told through three deeply personal perspectives - a family, a physician, and a fundraiser - the film reveals how science, emotion, and strategy come together in one shared mission: to change the narrative around a group of diseases that affect thousands of children worldwide, yet remain largely unknown.

The documentary follows a full year in the lives of its three central protagonists. At the heart of the story is the family of Jelte: a young boy living with a severe metabolic condition. The voice of his parents carries the emotional weight of the film, giving an honest and moving account of life with an invisible but devastating disease. Alongside her, we follow Prof. Sabine Fuchs, a pioneering pediatrician and researcher, who brings both scientific depth and human connection to the screen. The film also follows Jan Matthijs van Eendenburg, director of Metakids, as he leads a bold effort to unite a fragmented field and bring these diseases into public view, culminating in a record-breaking national campaign reaching millions.

The film includes scenes filmed during the 2024 SSIEM Congress in Porto, highlighting the vital role of the international scientific community.

For the next Jelte is not only a story of urgency and resilience. It is a case study in how collaboration and storytelling can mobilize awareness, funding, and change.

When at ICIEM 2025?

Film & Panel Discussion For the next Jelte

Selected scenes from For the Next Jelte will be shown during an official session at ICIEM 2025:

🗓 Date: September 3, 2025
🕓 Time: 16:15 – 17:15
📍 Venue: Room 6 (Sakura)

For the next Jelte is a powerful documentary about the fight to bring inborn errors of metabolism out of the shadows.

 

Told through three deeply personal perspectives - a family, a physician, and a fundraiser - the film reveals how science, emotion, and strategy come together in one shared mission: to change the narrative around a group of diseases that affect thousands of children worldwide, yet remain largely unknown.

 

The People behind For the next Jelte

Suzan Hilhorst - director, writer, journalist

Dutch writer and documentary filmmaker Suzan Hilhorst lost two of her children to a rare metabolic disease. She now uses storytelling to raise awareness and change perceptions.

More information: suzanhilhorst.nl

 

 

 

Jan Matthijs van Eendenburg - managing director of Metakids

The driving force behind Metakids’ breakthrough campaign. In the film, he shares how a clear message and bold strategy brought a little-known cause into the national spotlight.

More information:  metakids.nl

Prof. Sabine Fuchs - pediatrician, researcher, professor of Metabolic Diseases (UMC Utrecht)

A leading voice in the field, Sabine Fuchs is working toward a groundbreaking solution: gene therapy for all children with metabolic diseases. In the film, she shares her vision of how this could become reality - only if science, funding, and international collaboration come together. Her story shows the urgency behind the research, and the power of shared effort to drive real change.

Sanne de Haan - mother of Jelte, who lives with a severe metabolic condition

Her story shows the reality of living with a child with an inborn error of metabolism. With openness and strength, Sanne gives a voice to families navigating life with an invisible but devastating disease.

More information: liefdevoorjelte.nl